Taking Aim on Hemophilia A: Establishing Collaborative Practices Between HTCs and Community Providers to Mitigate Inequities in Care

Taking Aim on Hemophilia A: Establishing Collaborative Practices Between Hemophilia Treatment Centers (HTCs) and Community Providers to Mitigate Inequities in Care

ActionED

The expanding armamentarium of therapies for hemophilia A shifts the therapy selection process from a simple algorithmic approach to an individualized approach. Yet persistent geographical and gender-based inequities in care undermine earlier recognition and optimal access to treatment for many patients.

Individuals residing in rural locations in distant proximity to hemophilia treatment centers (HTCs), may experience delayed diagnosis and decreased access to care, including limited access to novel extended half-life and non-factor replacement therapies which often must be sourced through larger centers able to provide more specialized care. And while hemophilia is often thought of as a condition primarily affecting males, women with mild to moderate forms may experience heavy menstrual periods, easy bruising, or prolonged bleeding after surgery or injury, and often remain undiagnosed. These women, as well as men with mild to moderate forms of hemophilia, may unknowingly put themselves in higher-risk situations and fail to recognize a bleeding episode when it occurs.

To improve evidence-based hemophilia A care for all patients, this activity supports community providers and hemophilia specialists with developing efficient and effective clinical protocols and pathways to improve recognition, referral, and individualized prophylactic management of patients with mild or moderate hemophilia A.

Faculty: Leonard Valentino, MD, Lucy Ramirez, MSW, LCSW

Release Date: October 10, 2025

Expiration Date: October 10, 2026